Page 1: Information about the study

Section 1 Information about the study

As part of the mobility special interest group (SIG) of the ‘Rehabilitation in Multiple Sclerosis network’ (RIMS), we are undertaking this survey in order to determine how physical therapy services for people with MS (access, type of treatment, delivery mode, practical, etc) were affected by the Covid-19 pandemic in 2020. This survey is distributed in various countries in Europe and in Australia.
 
What will the study involve?
The study will involve a survey on your experiences about the delivery of your physiotherapy practice both before and during the Covid-19 pandemic (2020). The survey includes a mixture of both closed and open-ended questions, and should take approximately 20-30 minutes to complete.
 
Who has approved the study?
This study has been reviewed and received ethical approval from the relevant institutional boards for in each country. For the UK this is the Queen Margaret University Research Ethics Committee. You may have a copy of this approval if you request it.
 
Why have you been asked to take part?
You have been asked to participate because you are a physiotherapist working with people with multiple sclerosis.
 
Do you have to take part?
No, you are under no obligation whatsoever to take part in this research. It is entirely up to you to decide whether or not you would like to take part. If you decide to do so, you will be asked to complete an electronic anonymized consent form. If you decide to take part, you are still free to withdraw at any time without giving a reason. You are free to omit any questions but the more answers you give us, the more information we gain.

What information will be collected?
Information on your age group, education, experience and organisation will be requested. This is followed by questions concerning organisational changes and rehabilitation practices both prior and during the Covid-19 pandemic (2020).
 
Will your information be kept confidential?
Yes, all information that is collected about you during the course of the research will be kept confidential. The survey is designed in such a way that you cannot be identified from the data that you provide, and therefore is completely anonymous.
 
What will happen to the information that you provide?
All the information you provide will be inputted in a digital database. This database will be kept with the principal investigator of the study. Additionally, this database will be shared with the coordinator of the SIG mobility of RIMS’s network in order to undergo analysis. The datasets will be kept for at least 10 but a maximum of 20 years after which they are destroyed.
 
 What will happen to the results?
 Once the data in the datasets are analyzed, the research will be written up and presented as a summary report to be discussed at RIMS SIG mobility group meetings, and may be published in scientific journals or presented at National or International Conferences. A copy of the research findings will be made available to you upon request to Dr Marietta van der Linden, mvanderlinden@qmu.ac.uk


 What are the possible consequences of taking part?
  We do not envisage any negative consequences for you in taking part in this research.
 
 Any further questions?
 
 If you need any further information, you can contact  Dr Marietta van der Linden, mvanderlinden@qmu.ac.uk

 
 If you agree to take part in the study, please complete the consent form on the next page.
 
 Thank you for taking the time to read this.