Participant Information

Participant Information


If you agree to participate in the study, you will be asked to complete an online survey. The researcher is not aware of any risks associated with questionnaires.  Completion of the survey should take no longer than 15 minutes.  You will be free to withdraw from the study at any stage and you would not have to give a reason.


For those who need assistance filling out the online survey, family members may fill in their responses on their behalf. 


All data will be completely anonymized. Your name will be replaced with a participant number, and it will not be possible for you to be identified in any reporting of the data gathered.


All of your personal information will be treated in accordance with the terms of the UK Data Protection Act 2018 and the General Data Protection Regulation (GDPR).


Processing your personal information is necessary for the performance of a public task carried out in the public interest or in the exercise of official authority vested in us as the Data Controller (GDPR Article 6 (1)(e) and for statistical and research purposes (Article 89 GDPR).


Appropriate security measures including anonymization will be put in place to protect your data at all times. Your personal data will be treated with confidentiality and will not be shared with any third party or transferred out with the EEA without your express permission or without ensuring appropriate safeguards are in place. Your data will only be retained for as long as is necessary. You have the right to withdraw your consent to us processing your personal data at any time. In order to do so, please contact Hillary Cruise.  Please note that your data may be used in the production of formal research outputs before you withdraw consent, therefore it is advisable to contact us as soon as possible if you wish to withdraw your consent. We will destroy your identifiable data upon request, where possible, however in some situations we will require to use the data collected up until your withdrawal of consent. If you have any questions relating to the processing of your data which are not resolved by contacting Hillary Cruise, please contact the QMU Data Protection Officer


If you would like to contact an independent person, who knows about this project but is not involved in it, you are welcome to contact Professor Janet Beck on


Contact details of the researcher


Name of researcher:   Hillary Cruise


Address:                        MSc Audiology Student, School of Health Sciences

Queen Margaret University, Edinburgh

                                       Queen Margaret University Drive


East Lothian 

EH21 6UU


Email / Telephone: